Author Archives: CarrieWeaver

Looking back

I know that I have been quiet.  As the title of my last post was “long year” or something like that.  It truly has been a long year.  Elizabeth is doing well.  She loves school and her teachers and friends. … Continue reading

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A long year…

This past year has been a lot of things.  The one thing it has not been is unsuccessful (yes that is a double negative;)).  That is saying a lot when you think the past 365 days.  October has always been … Continue reading

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Sweet Brothers

Charlie will be 3 in October. He is wise beyond his years. He takes care of his big sister. He gets her cheese when he gets himself a piece. He takes her hand and helps her step over the threshold … Continue reading

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“Where there is love there is life.”

So much has happened since I last posted and it has only been 1 month:)  We received notification at the end of July that our landlord was not going to renew our lease so we would have to move by … Continue reading

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Oh The Places You’ll Go!

So…Back in October, we took a leap of faith by moving to California.  At the same time, we took another leap of faith and applied to have Elizabeth participate in the IGF-1 drug Clinical trial being run out of Boston … Continue reading

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Rett Siblings (or siblings in general)

I have some pretty amazing siblings in my life…

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Boston and Washington DC – Trials and Conferences!

Sorry that my blog posts are sporadic lately.  We have been one busy and crazy family.  I do realize that me talking is beneficial to some people (my husband would probably disagree;)) After almost 3 years into our Rett life, … Continue reading

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This is your brain on drugs…

So, you are wondering…what that heck is with that title? I was thinking about when I grew up. There was a commercial, an anti-drug commercial and it was an egg…This is your brain on drugs…and there was another one, I … Continue reading

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I was not ready for this…

I was not ready for this…I was not ready for this. I knew this day was coming, but it was a day that I have put off for 18 months. Elizabeth’s pediatrician in Austin had given us a prescription for … Continue reading

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6 runners, 2 days, 195 miles in honor of Rett Syndrome – GP2C

6 runners, 2 days, 195 miles…all in honor of our girls with Rett Syndrome. Allison Foley, a fellow Rett mom will be running Mile 18 in honor of our daughter, Elizabeth Claire. The race is this coming Saturday/Sunday, April 4-5 … Continue reading

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